So, we are back in hospital and this is our final high dose methotrexate round - the fourth. We had the third one and I opened the computer a few times during that stay but every time I was int erupted . It is amazing how the time just disappears and you don't seem to be doing much. Georgie is doing well. She still looks great and has even managed quite a few days at school. ( 7 school days between our third and fourth hospital stays) She is really enjoying school which is wonderful so I think that coming back into hospital is a rude shock so she has crashed and is not too happy. Considering everything that she has to do - blood tests, generals, chemo, different drugs she is such a brave and strong little girl. (A tall little girl too - the nurses think that she is joking when she tells them how old she is lying stretched out on the bed !)
Georgie will have a break over the next two weeks. We have to come back next Friday for an echo of her heart before she starts the next Protocol then a whole week off - not even the nightly chemo pill at home - then on the 5th of July Protocol II begins with a bone marrow aspiration. We will then become regulars back in clinic for chemo in the treatment room.
She still has her little gold bob which is the talk of most people especially when you are in the Camperdown Ward with all the bald children of various ages. As you would expect that each time we come into hospital to stay she is finding it a little harder to put a smile on her face and her mood is rather flat. The doctors, nurses and other professionals continue to try to get her to smile or interact with them as they know that she is generally very upbeat and cheeky but she makes it quite a challenge. She is also very tired so she is sleeping more during the day - also understandable as our nights (and days) are continually disrupted going to the bathroom.
ON THE HOME FRONT Cate and Charles are both doing ok with out us. Jill is doing an amazing job of being Mum/Grandma to them both and managing all the other household duties. She and Charles still go and do the grocery shopping together which works so far. Charles loves the outing and saying hi to everyone and anyone. Cate went on an excursion to the Maritime Museum this week which she enjoyed. Michael is very busy at Virgin - a little too busy unfortunately but hopefully in the not so distant future things may calm down . Fingers crossed.
We settled on our house last Thursday and the containers arrived at 6.45am on the Friday so it has been go go over the long weekend. I called in some professional help to assist with the unpacking of the kitchen on Sunday. Ann and I worked ten hours straight -unwrapping, washing, drying, putting away... so we got rid of any Dhaka dirt as one friend put it so beautifully! There are still many boxes to go once we get out of hospital. We then have to think about furniture and start looking so we have something to sit on. All in good time.
Our new address is 18 Halcyon Ave Wahroonga NSW 2076. Our new home phone number will be +61 2 9943 0559 (from the 26th of June)
The little cherub is still asleep so I feel I should also make up my little bed next to her and try to grab some sleep as well. Take care all. To those of you in the north - Happy Holidays and keep us posted as to your travels. Love The Seymours
Hi Sal, so lovely to hear all your news. Gorgeous photos of the kiddies... I was only saying yest to the Dhaka girls I wonder how big Charles is now- Quite! I hope Georgie cheers up once she gets home and has a wee break from all the chemo etc. She's amazing! So are you- hope you can get at least a tiny bit of rest once home. Your own bed should help. I wish we could send Shangma & Shaporna over to you to help unpack! All our love, Kym & Stella (Jamie says hi from Sri Lanka) x
ReplyDeleteHello darling, wonderful update from you. I have just updated all your contact details and will call you after 26th June. Always so lovely to hear how you guys are getting on.
ReplyDeleteNo doubt Georgie will relish the week off from treatment. Yay.
That was a brilliant idea to get someone help you with the unpacking. Such a help.
I hope you have managed to get a bit of rest whilst George has been sleeping.
Lots of Love to all the Seymours,
Katy
xoxo